Teens with Lymphedema Conference - Agenda and Registration

REGISTRATION INFORMATION:

INTRODUCTION

The Adelprise Lymphedema Association (Association of patients affected by Primary and Secondary Lymphedemas) believes that due to the lack of existing information it is time to celebrate the “I Encounter of Youngsters and Teenagers affected by Lymphedema.”

The knowledge and insights gained from these workshops are important because from the moment an individual is diagnosed with lymphedema they need to understand this condition, know how it affects their body, and learn how to successfully manage the treatment of this condition. We also believe it is important to understand the steps to protect against making the condition worse and to know how to use the self-help resources that can improve the quality of life. Having lymphedema creates emotional and social difficulties especially for young patients and their families. Separate sessions for youth and their parents will provide insights that increase the potential of successful treatment and an improved quality of life.

OUR OBJECTIVES ARE TO:

Provide participants with useful information about current therapies and opportunities to practice these skills.

Encourage particpants to share fun with supportive new friends while gaining insights that can improve their quality of life.

Organizing Committee:

Raúl Calleja de Busts
Merche Sánchez González
Maite Alonso Duarte
Pablo Montero Garzo
Teresa Merino Clemente
Zuriñe Blasco Etxeguren

Scientific Committee:

Dra. Adora Fernández Domene
Ana Belen Pardo Porto
Luís Miguel Amurrio
Amaia San Miguel López
Mª Jesus Gómez Lago

SUGGESTED LODGING

International Dialing Code and Telephone #

Hotel Barcelo * * * 34 945130000
Hotel Chancellor Ayala * * * * 34 945228100
Hotel Wellinton * * 34 945175707
Hotel Atxuri * * 34 945255800
Hotel Fact * * 34 945147230

Note: Lodging and meals are at the participant’s expense

WHO SHOULD ATTEND

* Youngsters from all countries between the ages of 12 to 18 years who are affected by Lymphedema.
* Presentations will be in Spanish and English.

REGISTRATION

There is no charge for registration; however it is necessary to complete and return the registration form before October 1, 2006. Attendance is limited and early registration is recommended.

Mail this to: THE ASSOCIATION ADELPRISE C/VICENTE ABREU N UNDER 01008 VITORIA-GASTEIZ (SPAIN)

Youth must include a completed “Parent’s Permission and Authorization Form,” signed by either parent or their tutor, authorizing the attendance and participation in the Youth Encounter. Participating youths must be accompanied by an adult, parent, or properly credited tutor.

PRACTICAL INFORMATION

* Participants should wear comfortable clothes to the workshops.
* Those attending the self-bandaging workshop must bring their own bandages.

PROGRAM

FRIDAY, OCTOBER 27, 2006 4:00 - 4:30 pm

Greeting and Documentation Delivery

4:30 - 7:30 SELF HELP WORKSHOP

D. Luís Miguel Amurrio (Psychologist of AACC of Álava)

THEORETICAL – PRACTICAL CLASS

PowerPoint presentations on important topics Group discussions of these concerns Sharing experiences and insights Addressing problems and sharing solutions Stress reduction techniques to improve the quality of life.

19.30 h. - PAST, CURRENT SITUATION AND PERSPECTIVE OF FUTURE OF THE LYMPHEDEMA

Mrs. Zuriñe Blasco Etxeguren (President of Adelprise) Addressing problems and sharing solutions Stress reduction techniques to improve the quality of life.

SATURDAY—OCTOBER, 28

9:30 to 1:30 (with a half hour break).

WORKSHOPS:

Self-Manual Lymph Drainage, Prevention

Techniques, and Self-Care Of Lymphedema

Mª Jesus Gómez Lake - Physiotherapist and Mª Ángel Santamaría Aspiazu-Nurse Graduate

PRACTICAL THEORY:

The lymphatic system
Location of the lymph glands
Functions of the lymphatic system
Rules for self-manual lymph drainage
Movements to stimulate lymph glands
Learning about the directions for drainage of the lymphatic system.
Guidelines on the importance of preventing the complications of lymphedema. Recommendations to keep in mind regarding self- care, infections, hygiene, and rules for daily life.

2.00 noon Lunch Break

4:00 FUNCTIONAL RECOVERY OF LYMPHEDEMA

Pedro Gómez de Segura (Graduated in Physical Education)

PRACTICAL CONTENT

Breathing Exercises
Exercises for the neck, shoulders, elbows, hands, and fingers Stimulation of the trunk and abdomen areas
Mobilization of the hips, legs, knees, ankles, feet, and fingers

6:00 pm ROUND TABLE DISCUSSION

"Medical Aspects of the Lymphedema, and Support Treatment Therapies"

8:30 JOINT DINNER FOR PARTICIPANTS (Optional)

SUNDAY, OCTOBER 29, 2006

9.30 h. SELF-BANDAGING WORKSHOP

Dra. Fernández adores Domene (Teacher of scientific and practical Manual Lymphatic Drainage)

THEORETICAL – PRACTICAL CLASS

Lymphatic anatomy of the affected areas Demonstration of materials used for bandaging Caution and care to take with the bandages Active and participative class Self-bandaging demonstration Learning of the technique individually Help exercises

1:30 pm - Participants joint Conclusions

2:00 - End and farewell of the Youth Encounter

*********************************

REGISTRATION FORM I

Joint Meeting of Youngsters With Lymphedema Registration

Form Registration is FREE but must be completed by October 1, 2006

Full Name _________________________________________

Age _________________

Street Address ___________________________________________________________

City ________________________________________

State __________________________________

Zip/Postal Code______________________

Country _________________________

Telephone ___________________________

E-Mail _____________________________

Optional Joint Dinner: 20 Euros (Please check yes if you will be attending) [ ] YES, I plan to attend this dinner. [ ] NO, I do not plan to attend the dinner.

SIGNATURE____________________________________

*For the optional Joint Dinner, please make payment to the following

CAJA LABORAL

Authorization from Parent or Tutor

I do hereby give permission for this youth to attend I JOINT MEETING OF YOUNGSTERS WITH LYMPHEDEMA Name of Attendee

_________________________________________

Age ___________

Street Address ____________________________________________

City ________________________________________

State __________________________________

Zip/Postal Code__________________________

Country _________________________

Telephone ___________________________

E-Mail _____________________________

Signature of Parent or Tutor _____________________________________

Please circle title to indicate of Parent or Tutor:

Please return the Registration Form and a copy of Bank Receipt to confirm Attendance to the Joint Dinner to:

ASSOCIATION ADELPRISE
C/VICENTE ABREU Nº UNDER 01008
VITORIA-GASTEIZ (SPAIN)

Registration date limit: October, 1, 2006